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ABC Maternity
An online source for everything maternity and nursing.

Baby Builders
Pediatric Physical Therapist, Jenna Zervas, created Baby Builders to teach parents how to safly exersize their premature infant. The doctor recommended exercise program helps build strenth, balance, movement and coordination.

Preemie Twins
A resource for both parents of multiples and parents of premature infants.

All About Infant Massage
A holistic approach to infant health.

American Association for Premature Infants
A national advocacy organization dedicated to the improvement of health, development, and educational services for premature infants, children, and their families.

Bronchopulmonary Dysplasia (BPD)
A site for parents of children with Bronchopulmonary Dysplasia from the Children's Hospital of Eastern Ontario.

Coalition for Prematurity Awareness
A coalition created to form a united voice promoting the awareness of the incidence of premature births in the United States, the preventable causes, and possible consequences.

ePregnancy
A site that is helpful for moms (and dads) beginning before conception and continues after birth. ePregnancy provides you with articles, interactive features, forums, and other ideas and resources to keep you informed and inspired.

Feeding and Preemies
This site has many helpful resources regarding the problems premature infants can face both in the NICU and at home. Laura Williams (this site's owner) also manages an internet support group for parents of infants facing difficult feeding issues. You can access this support group via feeding@egroups.com

For Parents of Preemies
A site created by Jane E. Brazy, MD, the University of Wisconsin, and the Center for Perinatal Care at Meriter Hospital in Madison that answers many commonly asked questions by parents of preemies.

"Imagine.."
In 1997, Dianne Maroney (owner of premature-infant.com) asked the families of Preemie-l to tell their experiences and feelings around having a premature infant by finishing the sentence "Imagine.." Dianne often uses these insightful and moving stories as she speaks around the country, educating medical professionals as to the plight of preemie parents. Enter HERE to find the original "Imagine.." stories.

Kangaroo Care
Information on Kangarooing our little miracles.

List of National Preemie Parent Support Groups
A list compiled by myself with the help of Becky Hatfield

Little Hero
This website was created by two parents who have a great deal of experience in the NICU, both sad and happy. Through their journey, they created a beautiful baby record book specifically for preemies and term infants in the NICU called, "Treasured Memories." Their site also includes NICU statistics and other resources for parents.

Little One Productions
Claire Panke (a very compassionate NICU nurse) has directed a documentary file called A Chance to Grow. This film follows several families in the NICU and does an extraordinary job of showing the true side of life parenting a premature infant. This film has been seen on the Discovery Channel and is available to parents and health professionals.

Michael Hynan's Homepage
Dr. Hynan is a parent of a preemie and a professor at the University of Wisconsin-Milwaukee. He has researched the emotional stress of parenting a preemie and discusses his results on his homepage.

"Miracle" Caleb
The trials and triumphs of a preemie born at 25 weeks gestation and his families journey to acceptance of the life long disabilites Caleb faces, as a result of his prematurity. Here you'll also find resources and information on prematurity, disabilites, parenting a special needs child, siblings of those with special needs, the loss of a child/twin/multiple, and the story and pages of Caleb's sister Kylie, also a preemie born at 27 weeks gestation.

NICU 101
NICU 101 is your place for support, information and unique products like our homecoming anouncements, designed specifically for you and your preemie or NICU baby.

Parenting Special Needs Multiples
Articles by Elizabeth. A. Pector, M.D.
A wonderful website with many articles on parenting special needs multiples. Information includes material on premature and special needs mulitples, and the loss of a multiple. Dr. Pector is a parent of a premature, special needs child who is a surviving twin which brings great insight to her work.

Parents of Premature Babies (Preemie-l)
Anne Casey and Gary created this wonderful website that includes an online support group and information for parents of premature infants of any age. This site has excellent links for preemie parents!

Premature Baby--Premature Child
An extraordinary website that was created to support parents of premature infants, helping them provide the best opportunities for their children for a lifetime. On this site you will find the preemie-child internet support group for parents of preemies four years old or older.

Premature Baby Internet Resources
Resource websites that lead you to the world of preemie parenting. Created by Allison Martin, owner of Preemie-Child.

Preemie Parents
A reading room to help you parent your preemie.

Preemie Parent Connection
An educational site and newsletter for preemie families that provides support and information to all those who's lives have been touched by a premature birth.

Preemie Parent Support
A site created by Dr. Mara Tesler Stein to help parents of premature infants through their difficult journey.

Preemie Resource Page
A remarkable and very extensive list of resources (both on and off the web) for the families of premature infants. Created by Mary Sceary and the Alexis Foundation.

Small Wonders~A Preemie Place
A place where you can find out about many preemie-related issues.

T-Bone's Survival Tips for New Preemie Parents
Kerry Bone, a mother of a preemie herself, created this fabulous website for preemie parents and their family and friends. It includes helpful advice on everything from how to touch your preemie to helping your marriage.

The Early Edition
A collection of wisdom and discussions from the online support group Preemie-l.

The Preemie Place
A site compiled by preemie parents and health professionals with many informative articles and a forum for families of preemie kids!

The Preemie Purple Heart Page
A site that will give you courage and touch your heart.

The Preemie Ring
A beautiful collection of non-commercial premature infant websites. Most are personal web pages, others are informational sites.

Twins Magazine
A website especially for parents of twins that includes fun facts, resources, a parent forum, photo gallery, and a Twinsmall!

 

 

 

 

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Ava Baby's Boutique
At AvaBaby's,  you will find everything you need for your premature baby. We carry the largest selection of clothes for micropreemies, preemies and small newborn infants. These low birth weight and micro preemie clothes have been tested in the NICU environment and are still adorable to look at.

Deme Tots
Affordable quality premature infant apparel.

Jacqui's Preemie Pride
We have an assortment of premature infant clothing, accessories, Christening, bereavement gowns and sets for infants 0-12 pounds.

Lucy's Hope Chest
We offer preemie and newborn clothing with IV access for NICU's and beyond, at a very affordable price.

Preemie Clothes
You can purchase affordable preemie clothes designed especially for the NICU.

Preemie Proud
A store that caters exclusively to premature (preemie) and low birth weight infants through various stages of development - from in the NICU to going home.

Prematurely Yours
This site carries a wonderful baby book specific for preemies!

The Preemie Store…and More!
Where Pampered Preemies Shop!

Tiny Bundles
Custom-sized items for premature and low-birth-weight babies.

Tiny Little Clothes
Shop for your newborn, low birthweight, and preemie needs.

Tiny Things
Products for Premature Infants.

TLC Clothing Company
A site that specializes in preemie wear, accessories, and preemie resources.

Zach's 5th Avenue
Dress your preemie in the softest, cutest, and most stylish outfits that are just his size!

 

 

 

 

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Children's Medical Ventures
Children's Medical Ventures, Inc. was formed by a cooperative of premier Children's Hospitals to help improve the health and well-being of children through innovative products, educational programs, and consulting services.

Emory Pediatrics Developmental Continuity Program
A website that provides multidisciplinary neurodevelopmental evaluation and intervention services to infants and children identified as "at-risk" for neurodevelopmental disabilities.

Hot Neonatology Websites
Dr. Robert Cotton of Vanderbilt University created this very thorough list of websites that feature neonatology information for parents and professionals.

Lactation Pharmacology
A website created by Dr. Thomas Hale, author of Medications and Mothers' Milk that will help physicians, nurses, and parents make accurate decisions regarding the use of medications and breastfeeding.

The National Association for Neonatal Nurses
The only association in the U.S. specifically for neonatal nurses.

National Library of Medicine (Medline)
A resource to search medical journals and other related data-bases.

Neonatology on the Web
Created by Dr. Ray Duncan this is a site with neonatology-related literature, resources, and neonatology jobs directory. You'll want to use this site to gather important information for your practice or your own preemie.

NICU-WEB
Created by the University of Washington Academic Medical Center and The Children's Hospital and Regional Medical Center, this site gives extensive information on many common diagnoses, procedures/interventions, references and resources for the premature infant.

Points of Pediatric Interest
A wealth of internet links that can help all children including many with problems specific to prematurity.

Pediatrics
The official journal of the American Academy of Pediatrics

The Journal of Neonatal Nursing
This journal is published six times a year and contains a wealth of essential information for any professional involved in the care of the preterm infant.

The National Perinatal Association
NPA is a multidisciplinary association of individual professionals and organizations concerned with perinatal health issues from preconception through infancy within a multicultural perspective.

 

 

 

 

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IDEA '97 Final Regulations
The Individuals with Disabilities Education Act website. This site is in formal regulatory language, but anyone can find out more information about what the law should provide regarding an Individual Family Service Plan (IFSP) or and Individual Education Plan (IEP).

New Visions Information Papers
A site that includes many helpful "Information Papers" written about learning, feeding, and sensorimotor issues in children.

Ronald McDonald House Charities
Ronald McDonald Houses provide a "home-away-from-home" for the families of seriously ill children receiving treatment at nearby hospitals.

Special Needs Project
Good books about disabilities. Whether you're an educator, parent, professional, or person with a disbility, they have a book ideally suited for you.

The Bissell Home Page
A site from a courageous family who has one preemie twin with a tracheostomy and one twin with cerebral palsy. Information and stories from a set of parents who share a life with very special children.

Wrightslaw/The Special Ed Advocate
A notably informative site that gives up-to-date information about effective advocacy for children with disabilites.

 

 

 

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